832-212-9776

MY PKU AWARENESS FOUNDATION 
501c3 Not For Profit 

My PKU Awareness Foundation
GOT PKU?

Phenylketonuria (PKU) is a rare, inherited metabolic disorder that is characterized by the inability of the body to utilize the essential amino acid, phenylalanine (Phe). Amino acids, usually obtained from the food we eat, are the building blocks for body proteins. PKU is caused by a deficiency of the liver produced enzyme phenylalanine hydroxylase (PAH).​​

This enzyme normally converts Phe to another amino acid, tyrosine. Without this enzyme, Phe accumulates in the blood and body tissues. Excess Phe is toxic to the central nervous system and causes the severe problems normally associated with PKU. When left untreated, PKU patients who consume too much Phe are at risk of severe neurological complications, including IQ loss, memory loss, concentration problems, mood disorders, and in some cases, severe mental retardation. Damage done is irreversible so early detection is crucial.1
​1. https://npkua.org/Education/About-PKU
WHY ARE FRUITS & VEGGIES ARE PHENOMENAL?


 Newborn screening allows early identification and early implementation of treatment. The goal of PKU treatment is to maintain the blood level of Phe between 2 and 6 mg/dl2. Some Phe is needed for normal growth. This requires a diet that has some Phe but in much lower amounts than normal. High protein foods such as: meat, fish, poultry, eggs, cheese, milk, dried beans, and peas are avoided. Instead, measured amounts of cereals, starches, fruits, and vegetables, along with a milk substitute are usually recommended. These foods are allowed in quantities that suit the individual child's tolerance for Phe; some can have fairly liberal diets and still maintain good control of blood phe, while others must have a very strict diet. A synthetic, Phe free formula is used as a nutritional substitute for the eliminated foods.1 
​1. https://npkua.org/Education/About-PKU 
2. http://www.medhelp.org/lib/pku.htm
More About Us...

Watch Us Live!

While we cook dinner for families with different needs along side chefs from all over the world. Follow our Facebook page to get updates on the inaguration date and time.

In the evenings we will share our extraordinary meals as part of the United States Department Of Agriculture Child and Adult Care Food Program (CACFP).


PKU AWARENESS  EVENTS​​​​
Annual booth for the World Rare Disease Day where we meet medical staff from various hospitals; our goal is for one day to find someone extremely passionate about our disorder to help us find a cure.
An annual PKU float at the City of Pearland Christmas' Parade. The goal is to maximize PKU's exposure within our community and one day to be able to get national exposure.
Worldwide fun challenges to raise awareness of PKU
Join  Our Events

OUR FUTURE PROJECTS
Finish the contruction of our building to  be able to host PKU cooking classes, to mass produce frozen low protein dinners to be delivered all over the world at no cost to the patients, and to have a  training center for  patients who want to get back on the diet.  

One of the ways we plan to raise  funds to be able to accomplish our goals is to open the center to the public to celebrate birthday parties with PHEnomenal fruits & vegetables buffets.

We are also working to publish a 365 dinner recipes compilation... More To Come Soon!!!

If you would like to be notified as soon as our center is open please fill out the form below:
Name
Email
Details Of The Party
Phone
Join my mailing list ?
Submit
I Want To Donate To Make PKU Dreams Come True